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What Patients Say They Can't Access: Mining Cancer Screening Barriers from Online Communities

Summary

A new large-scale study analyzes over 56,000 Reddit posts and systematically extracts patient-reported cancer screening barriers from 576 U.S.-located posts, revealing recurring structural, informational, and psychosocial obstacles that vary by cancer type and community context.

SourcearXiv Computational LinguisticsAuthor: Ruimin Sun, Aokun Chen, Arjun Arunasalam
What Patients Say They Can't Access: Mining Cancer Screening Barriers from Online Communities
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[Submitted on 4 Nov 2026]

Title:What Patients Say They Can't Access: Mining Cancer Screening Barriers from Online Communities

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Abstract:Cancer screening disparities persist across the U.S., yet the patient-reported barriers driving low uptake remain poorly characterized at scale. While clinical surveys capture structured responses, they miss the organic, unsolicited discourse where patients candidly describe real-world obstacles. In this paper, we conduct a large-scale analysis of over 56,000 posts across six cancer-specific Reddit communities to surface barriers to cancer screening among U.S. patients. We apply a pipeline combining keyword filtering, barrier triage, open coding, and codebook synthesis to systematically extract and categorize patient-reported barriers from 576 U.S.-located posts. Our qualitative analysis reveals recurring structural, informational, and psychosocial barriers that vary meaningfully by cancer type and community context. These findings lay the groundwork for future work aimed at proactively identifying and addressing barriers at scale - spanning a broader range of cancer types and populations - and informing the design of targeted interventions, navigator programs, and health system policies that translate patient-reported obstacles into actionable solutions.

Subjects:

Computation and Language (cs.CL)

Cite as: arXiv:2611.07113 [cs.CL]

(or arXiv:2611.07113v1 [cs.CL] for this version)

https://doi.org/10.48550/arXiv.2611.07113

arXiv-issued DOI via DataCite (pending registration)

Submission history

From: Arjun Arunasalam [view email] [v1] Wed, 4 Nov 2026 20:27:00 UTC (482 KB)

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Key points

  • The study analyzed more than 56,000 posts across six cancer-specific Reddit communities and narrowed down to 576 U.S.-located posts for qualitative analysis.
  • Patient-reported barriers fall into structural, informational, and psychosocial categories and vary meaningfully by cancer type and community context.
  • The findings aim to inform targeted interventions, navigator programs, and health system policies that translate patient-reported obstacles into actionable solutions.

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